Activities
HFI provides a variety of educational programs, support groups, outreach and assistance programs to choose from.
Camp Red Sunrise
Date: June 26 – 29, 2011
Camp Red Sunrise is a week-long summer camp for children within the bleeding disorder community, ages 7 – 18 years. This program integrates patients in a program of fun, caring, education, guidance, and self-empowerment.
If your child is between the 15 – 18 years old, please contact the HFI for further opportunities for your child to learn how to become leaders in training. Leaders in Training will be provided training and educational opportunities that will allow them to develop skills in counseling younger campers.
Annual Family Conference and Holiday Party
Date: December 10, 2011
Once a year, HFI holds an annual meeting where we bring together the bleeding disorder community to discuss our accomplishments, upcoming plans and events, advocacy and outreach, our budget, as well as the latest information on research, products, treatments and news from our national office, the National Hemophilia Foundation.
Our annual holiday party wraps up our event season, with a visit from Santa, good food, games and families and friends coming together to share in the joy of the season.
Community Assistance Program (CAP)
HFI is pleased to offer financial assistance to those who qualify. We will try to help anyone with a bleeding disorder that is in need of financial help. Assistance can include making insurance premium payments, paying utilities or rent, and assistance buying groceries. Because of these difficult financial times, assistance is limited to $300 per person per calendar year. If you need assistance, please contact our office to request a financial assistance form.
Victory for Women
We are proud to announce our new women’s health and bleeding disorder initiative — Victory for Women with Blood Disorders, an endeavor that builds upon and expands the former Project Red Flag. With the assistance and expertise of volunteers on our education/outreach committee, public awareness committee, and the National Hemophilia Foundation’s (NHF) Medical and Scientific Advisory Council (MASAC), the Victory for Women with Blood Disorders program will incorporate education, advocacy, and support for women diagnosed with a blood disorder as well as raising awareness among women who have not yet been diagnosed.
Washington Days
Date: February 16 – 18, 2011
NHF’s annual Washington Days empowers individuals in the bleeding disorders community to affect the legislative process. Join us to:
- Become more informed on critical issues that affect your continued access to high-quality care.
- Meet face-to-face with lawmakers and staff who shape national healthcare policy.
- Learn effective grassroots advocacy techniques.
National Annual Meeting
Date: November 10 – 12, 2011
More than 2,400 people headed south this year, all the way to New Orleans for the National Hemophilia Foundation’s 62nd Annual Meeting. The yearly conference attracts people with bleeding disorders and their families, the healthcare personnel who oversee their care, and representatives from industries that provide products and services.
Attendees moved from educational sessions to rap sessions, from breakfast symposia to evening poster receptions and from the Exhibit Hall opening to the Final Night Event at Mardi Gras World, where the floats are made for the annual parade.
During the three-day meeting, consumers flocked to sessions on such hot topics as inhibitors, intimacy, issues that women face and how to choose an appropriate sport for your child. The two-day Medical Track for researchers and physicians gave providers the opportunity engage in discourse on new technologies, best practices for treating menorrhagia and circumcision, and consider aging issues affecting older men with hemophilia.
Saturday was action-packed, with an early morning Fit ‘n’ Fun walk/run past the mighty Mississippi, an awards luncheon honoring the best and brightest in the community, educational sessions on everything from dental care and siblings to alternative pain therapies and treatments for patients who do not respond to the current hepatitis C regimen. The day ended with a Mardi Gras in November party with a live band, baubles and beads, food and fun.
Start planning for 2011 when NHF takes its 63rd Annual Meeting “Inspiration” to our kind of town—Chicago. See you for “Inspiration” in the Windy City, November 10-12, 2011.